Posts Tagged ‘metastatic’

Ann’s Diary: The Jackson Labs

I had the privilege of speaking to doctors, bankers, parents, nurses, technicians, speakers, cancer survivors and more at the Jackson Laboratory’s Discovery Luncheon today in Naples, Florida.

To say I was honored to be there is an understatement. For me, a cancer person fighting the battle every day that Science is trying desperately to save me from, to be able to shed light on what it’s like to “be” a person with cancer is everything. It’s everything because I’m lucky to have been asked to speak to this distinguished group; it’s everything because I am alive and not gone to breast cancer, and still here to be able to speak to anyone at all.

So I’d like to take this time to thank all those who sat and listened to me. Those who didn’t do what they might have done today–have lunch with a friend, go shopping, be at work, draft that deal, visit with friends or one of a hundred other things that people can and do make happen in their free time. Today all those people carved 3 hours out of a busy Friday to listen to me an others speak about what The Jackson Laboratory is doing to help fight cancer–and how they might help the Lab win that battle; and if they help the Lab win that battle then–maybe, just maybe–they’ll end up helping me win my battle, too.

So to all of them–and if you were there, I’m talking to you–thank you.

Posted March 16th, 2012 by
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Ann’s Diary: Airport Anatomy

I was felt up by a woman today.

And before you worry that I was molested or somehow ruined in any way I will tell you I was not. I was in the airport. And trying to get through security, the shiny metal things on the front of my shirt made that 360-radiation-thing you have to stand in to make sure you’re not a terrorist upset. So I needed a pat-down–on my chest.

The Transportation and Safety Administration woman designated to check me out stood there, strong and silent. She looked at me with eyes I assumed had seen a lot: big breasts, small breasts, cleavage, covered, underwired, no-wired, old, young, t-shirted and no-bra’d. I was certain she’d had her share of discomfort from the patted-down who didn’t like the idea of a stranger touching their fronts. If she only knew she was about to touch somebody for whom that entire issue died 8 years ago this week with a double-mastectomy-no-reconstruction. I looked back at her and wondered what she’d make of me–not the small breasted nor the small chested but, for lack of a better term, the de-breasted.

“It’s your shirt,” she waved her powder-blue-gloved left hand at my flat chest in explanation for my deterrence. “The machine doesn’t like those buttons.” Her eyes met mine. “I’m going to need to feel around–” she stumbled, “here.” And she waved at the area where my breasts would have been had I had them.

I looked at my own chest which is flat but not obvious-to-the-eye gone. I keep myself trim so it’s not so clear to anyone who doesn’t know my story that I have had a double mastectomy without reconstruction. Of course when I say that I mean it’s not clear to anyone’s eyes: somebody’s hands are another matter. You can count my ribs if I let you.

I was just catching up to the reasons why I’d been stopped– this had never happened to me before and I wasn’t exactly with it–until she started to pat my stomach. I smiled because it tickled. Then she looked at my eyes and readied her hand to move up a few inches, maybe waiting for me to complain? Or react? Or at the very least acknowledge what was about to happen so that if I was going to complain I could do it now and save her a lot of trouble..

“I don’t mind,” I smiled at her. The blue latex glove rubbed on the material of my shirt as it slid up an inch to the area where my breasts would have started where they still there. For a beat, nothing in the airport seemed to move for me: not the airport itself, not the travelers behind me eager to get to their gates, not the TSA agent’s hand. The whole moment was the complete opposite of TSA testing/finding something dangerous: this was TSA testing and finding something missing instead.

The agent looked at me. I have no idea if she knew. Her hand rested for a millisecond on my ribcage–the only hard thing on my front frame for the last 8 years. That second clocked like hours for me. I couldn’t let her hang there in confusion.

“I have no breasts,” I said, smiling. “Breast cancer,” I shrugged as a quick means of explaining 8 years of hell. And to ward off any “poor you” looks from her, I smiled again and said, “It’s all good.”

She looked at me, same dead-pan face she started with. No recognition of what I’d just admitted. “You’re all set,” she said.

“Okay,” I answered her, moving quickly past her blue glove. I grabbed my computer, bags, jacket and ticket spread out on the conveyer belt like a lawn sale. Pulling on my shoes I thought–8 years into this battle with breast cancer that I am fighting and for the moment winning and that’s right, I am all set–

and lady, you don’t even know the half of it.

Posted March 14th, 2012 by
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Ann’s Diary: As Close As It Gets

Since I’ve had such a fine end-of-the-week–finding out that I do NOT have cancer in my shoulder–I’m enjoying my weekend just a little bit more than usual.

For me it’s the weekend where I’m not panicked about what’s next; the one where I’m not needing pharmaceutical help to sleep. The one where I can look at my kids and know I will be there for them for another month. Not that cancer could kill me in a month, but the fear and worry of rising tumor markers can take me so far out of my present that I might as well not be around for all the distraction I feel in those moments–moments that thanks to a non-cancer MRI result this week I am not having.

The thing about these moments for me–and for my husband–is that we make ourselves celebrate them. It was my husband who came up with the phrase first–and it began with our first positive PET scan post-lung surgery last year. He said, “this could have been a very different moment. We have to celebrate this.”

And he was right.

So if you are anywhere near me over the next few days and I seem a little brighter, a little happier, or just a little more pensive, you’ll know why. It’s not that I’ve been cured of cancer that’s making me grateful, it’s that the b*stard didn’t get me this month.

And while that may not seem like a ticker-tape parade day for most, for me it’s as close as it gets.

Posted March 11th, 2012 by
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Ann’s Diary: MRI Results

I have about 12 minutes to write what should be celebrated all day into the night for me–but with a child at the dentist, a smelly dog that needs grooming, laundry unfolded and three other appointments to not forget today, I only have so much time to tell you that ALL IS OKAY WITH ME!

I just got word that the MRI showed I have some trapezoid-ish muscle in my shoulder that’s wrapped around something and causing inflammation somewhere else and it’s fixable and “curable” and more importantly IT’S NOT CANCER.

Thank you for coming along with me on this recent ‘cancer carnival ride.’ This is the first time I’ve ever written about my fears before I got word that all was okay. It was a step in a new direction for me, one where I choose to let you in on my worried life not to exacerbate my fears but just the opposite, to alleviate them. That sounds strange to me but it’s what really happened. I spread the word that I was scared–not to strangers on the street but here at Project Pink, where you who care about me gather to check in–and when I did, the fear actually lessened for me. All last night and this morning I felt hugged, for lack of a better term–I felt supported. And somewhere I found the feeling that if something bad were to come of this, that I’d have all of your positive energy, vibes, prayers, chants and all the rest to walk with me as I faced the new challenge.

Which I don’t have to do…thank GOD.

So to all of you I give my heartfelt thanks and gratitude for hanging in there, for sending your love, for hoping for me, for making this easier to get through.

If you’re wondering what you did today that made a difference, wonder no more.

Posted March 8th, 2012 by
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Ann’s Diary: What A Day

My days go up and down.

Just this morning I was doing well. High off my recent Girlcation to Mexico, I was making jokes at the Infusion Center and drinking my magic Fiji Water to help the nurses find my veins for the needle for my anti-cancer drug. I had a good friend in front of me and a latte in my hand–it was all good.

Then I got home and a pain in my shoulder that I’ve had for the last few weeks started to get me worried. When you’re 46 years old, pains in the shoulder can be anything–a pinched nerve, a workout gone bad, the beginning of arthritis–just anything. When you’re 46 and a metastatic breast cancer fighter, pain can morph into fear of more disease quietly sneaking inside and stealing the life that I want so badly to live. Days will now pass like decades until I finally get the test results that tell me I’m not to worry.

Then to top it all off, I logged onto Facebook and, stumbling around, realized that someone I love but who I’m in a “time out” with for lack of better term has apparently dropped me as a friend. At least that’s what it appears like because that name is no longer on my peeps list. That’s a kick in the teeth for me. What a day this is turning out to be.

I really don’t want to go to the gym. I’ve got cancer meds pumping through my system. I’ve got fear welling up inside me. And I’m sad. If I let myself I’d ball up on my bed right now and recede into that space in my mind where my mental answering machine picks up and says, “I’m not here right now. Hang up and try your call later.”

But–here’s what I’m actually going to do:

I’m going to take some Ibuprofen and hope my shoulder pain goes away until my MRI tomorrow.

I’m going to get myself up and out the door to the gym.

I’m going to recycle my Fiji Water bottle and make sure I threw the last of my latte away so it doesn’t spill all over the floor of my car.

I’m going to throw in a load of laundry too–what the hell, I’m on a roll–

And I’m going to hope that the person I love very much who dropped me from what I call “Facebook life” because of our present lack of agreement makes a decision to put me back on the list of friends there–

because in my world this person is certainly still on mine.

Posted March 6th, 2012 by
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