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Ann’s Diary: I’m Back

I’ve been on vacation recently and just find myself coming up for air today.

I love vacation because it is a time for me to put away the stresses of life with metastatic breast cancer and just laugh, lay in the sun, and relax with the rest of the healthy world for a while.

But I found leaving breast cancer behind harder than I thought.  It kind of crept in anywhere I was–

like the harder-than-usual hugs I got from family and friends who haven’t seen much of me since my surprise re-diagnosis last fall.  Or the worried look on my mother’s face when she saw me playing with my daughter’s hair; and the phantom pains I got in my chest around where my original tumors were located 8 years ago, which turned out to be non-disease stress but sure felt like more cancer clumping up inside me–all of that and more moved like an ugly shadow behind me as I spent time on vacation with the people I love.

I suppose it was dumb of me to expect a full break from my medical situation, to truly live care free and above it all, ‘it’ being the fear that maybe I’ll die sooner than you will. But with me, hope springs eternal.  I figure why not look for the best of things and then if disappointed, well, at least I know I tried.

And the hope that I’m beating this breast cancer will never be far from me, I’ll tell you that.  Whether I’m in Boston or Baton Rouge, Maui or Maine, sitting at a Starbucks with an old pal or laying on a sandy beach on the east coast, I may take a vacation from my troubles now and then but you can be sure of one thing:

I’ll never take a break from beating the breast cancer beast.

Ann’s books ‘pink tips’ and ‘Words To Live By’ now available in the SHOP section of this website.

Posted July 25th, 2011

Ann’s Diary: My Father The Hero

Usually today I think of my husband and my children. We’ve been married almost 14 years and let’s face it, this is his day.

But for 45 years, I’ve had a father of my own–one who won the Purple Heart in WWII and who ran his home like a bunker of sorts–tough love, tight ship, iron fisted but generous and hard working.  None of us kids lacked for anything that was important–a good home, good education, good dental work. The “I love yous” were in scarce supply of course but then again, it was implied.  After all, he took care of us.

Now in his “golden years” of life–my Dad will be 87 this year–he lives his days in a haze of dementia.  He doesn’t remember your name, or why he knows you–or whether or not he brushed his teeth.  He’s not quite sure why you’re bringing him to “daycare” (and don’t call it that–for goodness sakes) and he’s not altogether certain of what he’s doing when he gets there–

but he goes just the same.  It’s his job, it’s his duty.  After all, my mother said so. And that’s everything to him now, because after years of him being in charge of the house he now clings to mom for every instruction.

And my mother has been my father’s ROCK since this awful, angry diagnosis hit our family like a shower of bricks 4 or 5 years ago–at this point it doesn’t matter to us because it feels like forever.

But what amazes me most about my father, and what grabs me “right around the ankles” as he used to tease us–is that he’s hanging in there.  He’s doing his thing. Forget that his “thing” is clearly uncertain to him–he’s not sure what is for lunch, or how to even make it, or (20 minutes later) whether he actually ever ate lunch–

but he doesn’t complain.  He gets up,  he smiles hello. He kisses my mother with the love and honesty of a child and he tells her how beautiful she is with the consistency of a clock chiming the hour.  He greets each day with a “okay, what am I doing now?” attitude and he always has a smile and a “don’t you look good” commentary to anyone he meets. To me, soldier that he was, father that he is, he’s now my explicit, unequivocal hero.

My Dad may not be getting any more Purple Hearts for wounds sustained in battle these days–not like that time in ’44 when a whistler bomb exploded near the Med-A-Vac tent, blowing up dozens of wounded soldiers, several nurses and the doctor my father was just speaking to second earlier–miraculously leaving Captain Murray full of shrapnel but otherwise unharmed..

yet if it were up to me Dave would be getting the Golden Heart Award.  Because he’s fighting a battle with dementia that he can’t win. At least my metastatic breast cancer comes with medical and alternative choices I can make to beat it back. This blasted disease just keeps advancing with no hope of retreat.  And beyond the memory games, old music and photo albums that we ply my parents with, my father has zero chance of getting back the man he once was.

And he has every right to give up and quit.  I mean, come one–who wants to fight a battle they can’t win?

But that’s what Dad’s doing.  He’s in the fight, smiling hard, waking up to to each new day and moving forward with everything he’s got, everything he is–even as he loses more of that each day.

And if that’s not a hero, I don’t know what is.

Happy Father’s Day, Dad.  I love you.

Ann’s books ‘pink tips’ and ‘Words To Live By’ now available in the SHOP section of this website.

Posted June 18th, 2011
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Ann’s Diary: Lucky Me

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Three weeks ago today I was sitting in a hospital bed with two feet of tubes stuck up my left lung trying to avoid asphyxiation by breast cancer. Today I walked a 7K. Guess who’s feeling lucky?

And the name of this 7K as Irish luck would have it is the “Lucky 7″, put on by the non-profit Change Of Pace.  And I was feeling pretty fortunate– and not just because it was partly sunny and 65 degrees, perfect weather for an athletic event. And not just because the name, Lucky 7, contains my favorite number, seven.  Not even because I had my husband by my side as we high tailed it down the path, passing a few people but watching many serious athletes fly by us, in search of a win, a second, or maybe a tie–while all we worried about was what flavor gatorade we’d get at the next refreshment station.

I didn’t feel lucky for any one of these reasons I just listed but for every one of them.  Three weeks ago I couldn’t get out of bed without two machines dragging behind me and the threat of a bed pan if I didn’t.  I would have cracked a shillelagh over anyone’s head who tried to make me walk the surgery floor much less strap on Nikes and beat feet for an hour and ten minutes through a city.

But today was different.  On this day I geared up, headed out, hit the roadways and practically did the Irish jig as I sailed through my 7K, 3 weeks post surgery.  Breast cancer ain’t gonna get the best of this shamrock. And rainbows and a pot of gold to my cracker jack surgical team for doing such a great job that all I have to show for my ordeal are three scabs and a hint of hospital tape residue.

I was determined upon leaving the hospital this past Valentine’s Day that for this upcoming Irish sweat event I would be ready to go.  And I feel so fortunate that I was. I am grateful to Change of Pace for putting on the run and I was thrilled that my husband decided last minute to join me.  As we walked and watched the Ks go by, I couldn’t help but feel like I was kickin’ some cancer butt as I did.

So that was my day.   I did the Lucky 7.  Or as I like to think of it now, the Lucky Me.

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Posted March 5th, 2011 by
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Ann’s Diary: Ticket To Ride

Do you like amusement parks? Or more specifically, do you like roller coaster rides?

Grab a handrail and read on, because if I’m not on the biggest loop-de-loop of a life I don’t know what I’m on…

I got amazingly GREAT news from my oncologist yesterday.  This is the same oncologist who, like my lung oncologist after my surgery last week, saw all kinds of cancer in my pulmonary region and thought “Oh sh-t, this girl needs chemo.”

But three days ago, my tumor markers came back–the ones that had been stabilizing a month ago and then faked me out when all this cancer was found–and are reading not just stable but DROPPING.  And not just dropping a few percentage points but really plunging downward, in one case by almost 50 percent!

Did you lose your breath?  Join the club.  As my sister-cousin said to me yesterday when she got this latest news, “I don’t think we’re tall enough to be on this ride!”  (She lives near Disneyland.)

Seriously, this is nuts.  One day we’re up, one day we’re down.  Yesterday I’m preparing my kids for a hairless, exhausted shell of a mother and today I’m dancing toward them with their breakfast plates full of food I just cooked because I had the energy–and the hope–that goes along with good news.

How’d it happen? It’s hard for a non-medical person to explain it, but the doctors said something like:  the cancer they found, which on first blush looked like new cancer, is really likely old cancer that they hadn’t realized was there.  And part of the reason they hadn’t realized it is because I look, act and am trying to be as healthy, active and as upbeat as I can. In other words, I don’t act like a cancer ‘patient’–if there is a definition to that, and I’m not sure there is. We patients go through a whole load of junk on this journey and who we are changes and morphs every which way throughout the experience.  I don’t recommend a ticket to this ride.

But for now, I have to thank you for helping me out.  I know this is exhausting for you as well as for me, and as my husband asked me last night, “Do you think we’ll suffer from ‘friend fatigue’?  Do you think at some point our friends are just gonna bow out because this is all too much for them?”  I thought about that for a second;  certainly that could happen. Hell I’m fatigued and it’s happening to me.  If I could step off this ridiculous ride I would, so why not you?

So I figure this:  if you need to bow out for awhile and get some popcorn, a drink and a long walk far away from this Spacey Mountain, you go right ahead.  We will not hold that against you.  (And if you could some day take my husband with you and buy him a

beer(s) so he could forget about this for a nano-second, I’ll buy the drinks.)

This is a ride I’ll be on for the rest of my life, and I don’t expect any of you to hang on to every twist, lift and plummet. I really don’t.

But I do want you to be there when this terrifying machine has slowed down and I can unclench the handrail and catch my breath–vibrant, healthy, and tall enough to have withstood the ride.

Posted February 23rd, 2011 by
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Ann’s Diary: The “M” Word

There are a lot of words in the English language that are forbidden. They all have letters attached to them, letters like F (the “F” word) and C (the “C” word). Even L got mixed in there when the creators of a TV show on lesbianism thought they’d borrow the verboten connotation in order to grab attention and boost ratings. From what I hear it’s a good show and many people watch so I think it worked–but technically the L Word is not in league with what I’m referring to.

I’m referring to those bad things that make us shudder; those words or visuals that are conjured up by throwing consonants and vowels together, breathing air into them, and using them to describe terrible things. The” S” word comes to mind–can’t you just smell it?

So I’d like to add a new letter to the pile of F, C and S-word negative verbal phraseology: the M. And that’s M for “the M word” whose definition, as I am now defining it, is metastatic. As in metastatic breast cancer.

Which I have.

Metastatic means that the cancer has traveled outside the original spot where it first appeared in a body. It means that after surgery, chemotherapy, radiation, lost hair, exhaustion, bleeding gums and missing an entire summer of my children’s lives to battle back disease, a few rogue breast cancer cells beat the odds, hid out in my body and after 6 years have come out to wreak havoc once again in my system. They are now in the lining of my lung–outside the breasts, and–metastatically speaking–trying to kill me.

And that’s the cold reality of this (insert F-ing word here) disease that I have and that is what I must face in 2011. There are no amount of letter words to describe how ticked off I am that this breast cancer thinks it has any right to be inside me right now. But I promise you that I am not going anywhere. You know me, I will do this. I’ll use every letter in the alphabet if I have to but I will win, I will survive, I will beat the odds. I will. I will kick the S word out of this F-ing word M word’s A word.

You have my word on that.


Posted January 6th, 2011 by
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